Living in the dark - Hi Everyone! I have a very rare disease called EPP (Erythropoietic protoporphiria) from the age 2. I can’t go out to the sunlight, because it makes me feel, I am burning and if I am going out, for I have to for the sake of our children, I must bear the consequences of sore reddish hands and nose. I am Bernadett Vadász from Hungary. My husband and I have 3 children, who may have the disease, but we cannot be certain of that till they reach age 10 for examinations. We live...